I decided to start blogging about Jordan from the moment I found out I was pregnant. Jordan was born with a little arm that didn't grow like most babies. Her left arm stopped just above the elbow. Now I'm committed to making sure Jordan gets everything out of life. We feel blessed to be the parents of a very special little girl.

3.27.2008

Group pride

I'm a co-moderator for a support group that's been known as the ABS Support Group for a long time. ABS stands for Amniotic Band Syndrome -- a diagnosis many kids get when they're born missing pieces of limbs. It's what my doctor said immediately. I'm now very skeptical with that diagnosis... And I lean more towards a vascular incident that restricted Jordan's blood flow just at the moment that it affected her arm. Anyway, this week we announced that ABS Support is now called Sammy's Friends in honor of the founder of the group's daughter.

Anyway, this has been one of the online groups where I've found a lot of support. I tend to talk a bunch with the parents on the group and in the last few months, I've become a moderator on there with six other moms. During that time, we've just gone through a big brainstorming process to name the group differently so we can produce business cards and other stuff so more parents can learn about our group and find that there are a lot of adults, parents and kids who can offer support, advice and friendship.

So, one of the moderators put together this really cute logo and we're close to putting together a cool business card. I can share it at doctors offices and prosthetic groups around my area so I can reach out to more kids and parents in town. I'm pretty excited.

4 comments:

Anonymous said...

Love the logo! I think it's great. And raising awareness is always a good thing. ;)

twin power mommy ♥ said...

what a neat idea! the logo sort of limits it to arm/limbs and not including us with leg/limb problems.
just a thought, certainly NOT a gripe in any way.
have a wonderful weekend.

Jen Lee Reeves said...

Yeah - We struggled with how we could include all types of differences in one logo and we just couldn't figure it out. Of course, we're always happy for someone else to develop a different logo for us -- But we did what we could with the logo skills we had! Hopefully lower limb parents will know that they're just as welcome to join. We all know that there's all kinds of differences... And it's great to have other parents to lean on and kids to get to know. :-)

Student of Life said...

So awesome. Way to go, girl. That is important work, even if you don't get paid for it. I think it's a great logo. It's so pretty, everyone will want to look at it. More eyes mean more awareness, and that's really the point, right?