I decided to start blogging about Jordan from the moment I found out I was pregnant. Jordan was born with a little arm that didn't grow like most babies. Her left arm stopped just above the elbow. Now I'm committed to making sure Jordan gets everything out of life. We feel blessed to be the parents of a very special little girl.


Troy Farnsworth needs to be my friend

All of my neighbors were talking about a kid who was on The Today Show yesterday morning... He lost his arm to an alligator this past summer and he's been given the latest technology by Hanger Prosthetics. You should click here and watch.

This kid is awesome and clearly I need to get to know Hangar's Troy Farnsworth who is the director of the company's National Upper Extremity Program. I haven't found his email yet, but I clearly need to see if he'd like to work with a younger, just as positive and active patient. I'm excited to see what we can do with Scheck and Siress in Chicago next month, but it can't hurt to see if Hanger wants to play with Jordan. I think Casey Edwards is proof that working with younger prosthetic users can really help push technology forward! We worked with our local Hanger prosthetics when Jordan was much younger and we weren't able to build anything that was helpful other than go to a lot of appointments and get her worked up and upset. It would be wonderful if Hanger was looking to improve its ability to work with children and really find successful solutions. Kids deserve successful tools just like adults!

Jordan has taken to her current prosthetic really well lately. It doesn't work properly, but she wants to use it. I can't wait to see her working with a tool that works with her instead of against her!


Lori said...

I saw it! That boy was so cute and positive and I cried when they game him his new hand. What an incredible company to help this young man out in such a way. I was blown away by the technology of his prosthetic (spelling?:)

I'm sure your little girl is just as deserving; anyone can see that by looking at the smile she carries in every photo:)

pocketfulsofsunshine said...

Great story. I missed it on the show this morning but am so glad you posted it! Thanks for sharing!

osagebluffquilter said...

Jen, you need to adopt that young man. What an inspiring story. I hope, you get to meet him soon!

Eric Westover said...

I am the founder of UpperEx, a national nonprofit dedicated to serving those living with an upper extremity limb loss or difference. Our web site is www.upperex.com.

The new arm that young man got is called an i-Limb. It's a technological marvel but just one more tool in the tool box. I was able to try one out this summer and it was pretty cool, but it won't perform well for sports activities or anything that is remotely heavy duty. You also can't get it wet or you'll fry the computer.

Which office of Scheck and Siress are you going to? One of our board members is a CP for them in Chicago, his name is Dave Rotter. He's been doing upper extremity for eleven years and is very knowledgeable.

I'll also tell you that you'll have an extremely hard time reaching Troy Farnsworth at Hanger.

Please feel free to give me a call at 800-573-6329.

NerdyMom said...

It's great to see positive things about David Rotter. He's who I'm working with next month and I am really excited to see what we can create for Jordan!