I decided to start blogging about Jordan from the moment I found out I was pregnant. Jordan was born with a little arm that didn't grow like most babies. Her left arm stopped just above the elbow. Now I'm committed to making sure Jordan gets everything out of life. We feel blessed to be the parents of a very special little girl.


Big developments

You may see a major trend in the photos I show here on Jordan's blog. Dance, soccer, football. Repeat. Dance, soccer, football. We've had a pretty active but consistent life in the last few weeks. Jordan has dance on Thursday and Saturdays have had the combination of Cameron's soccer games and going to football games. So my pictures of Jordan are clearly in a pattern of pink, green, black and gold.

But it looks like we're mixing things up. In November, Jordan and I are going to the Chicago area to work on her new prosthetic. We aren't going in the myoelectric direction this time. We're going to use a body powered prosthetic that will let Jordan really get some consistent function. There are some things she really wants to do: Swing a bat, ride a bike -- stuff she tries SO hard to do but her little arm is just a little too short to help with. Not long after that trip I'm going to China to conduct some training at a media group. Very exciting but overwhelming since I'm also speaking at a national journalism conference in between those two trips. Oy. Oh... Did I mention there's a major election the day before Jordan and I go to Chicago? Man I'm fried just thinking about it.

But I'm excited about the many big things in our future. I look forward to working with a new company and the possibility Jordan will be able to work with a tool that will help her really do stuff she wouldn't normally be able to do. And it won't piss her off. Her current prosthetic hasn't functioned like we wanted and it's gotten to a point where Jordan yells at it to open when she wants it to open. She also yells at it to close when the hand opens and closes for no reason. But I know she's ready for something that works. A couple of days ago we were hanging out with a bunch of adults when Jordan said she has three arms: her big arm, her little arm and her robot arm. I thought she was joking about three arms until she defined all three arms. She's right. She really does have three arms. I love it.


Anonymous said...

Best of luck to you as you try out the new prosthesis! I hope it will work for her well. ;)

twin power mommy said...

That's cute!
Kids are so observant. And sometimes, sooo right!