I decided to start blogging about Jordan from the moment I found out I was pregnant. Jordan was born with a little arm that didn't grow like most babies. Her left arm stopped just above the elbow. Now I'm committed to making sure Jordan gets everything out of life. We feel blessed to be the parents of a very special little girl.


Family time

Jordan got to enjoy a surprise visit from Uncle Barry and Beth yesterday. She was so excited when she saw her Uncle. The coolest thing: She knew who he was before we had to tell her. That's pretty special. By the end of their visit, Jordan was calling him "Beardy" with periodic proper pronunciations. Very cute stuff.

Today Jordan got to hang out with the big kids at a Science Night event put on by Cameron's after school program. It was super cool and Jordan even got to help create slime! Gross, but she really liked stirring. Maybe I'll get her to help me make pancakes or cookies that involve stirring. I think it's that play kitchen of hers that has got her into mixing and creating.

By the way, for those of you who were wondering, Jordan's prosthetic has been back for a week. It seems to be working a bit better... It still has a strange click when the hand opens very wide. But the sensor just seems placed a bit wrong -- it either goes crazy and constantly opens and closes from Jordan's muscles or it barely opens and closes. There doesn't seem to be a happy medium. So I'll just keep considering the arm as a tool to help her grow muscle -- And I've seen her use it for all kinds of gross motor things. Today I watched her push a chair into a table and pull up into a big chair. I even showed her how she could use it to drink from a water fountain.


ncg said...

I believe we have been keeping up with each others daughters (both with ABS), but I wanted to ask you about what type of prosthetic you have for your daughter. My daughter doesn't have one yet, but I don't know what type to look at for the future.

NerdyMom said...

We use a myoelectric prosthetic. She also has a passive prosthetic -- both are in almost a 90 degree angle to make up for her lack of elbow. I worked with a local prosthetic office first, but they were never able to come up with something that worked. So now we're working with Pediatric Prosthetics in Houston.