I decided to start blogging about Jordan from the moment I found out I was pregnant. Jordan was born with a little arm that didn't grow like most babies. Her left arm stopped just above the elbow. Now I'm committed to making sure Jordan gets everything out of life. We feel blessed to be the parents of a very special little girl.
Showing posts with label BRAT diet. Show all posts
Showing posts with label BRAT diet. Show all posts

6.15.2007

It's back

Jordan's prosthetic is back and she'll be able to start wearing it again tomorrow. She will be the proud owner of a prosthetic with a new glove! The "skin" is clean again!

Miss Jordan is walking better than ever. It's pretty exciting. But her tummy isn't improving. The BRAT diet only led to a really gross diaper problem... A different problem than comes from eating standard food. So I'm a bit stumped on what to do. I kind of think we're just going to have to play this out by ear until those teeth actually push through. It has to happen soon!

6.13.2007

Battery failure

Jordan's battery on her prosthetic just flat out failed. So it should be back home by tomorrow for her using enjoyment again. She has been pretty uninterested in using the passive prosthetic. It isn't heavy and she can move it around more... But she's been pretty off balance using it.

I guess I didn't realize how she actually has come to rely on her prosthetic. It gives her a center of balance. It also gives her some substance to hold onto things. At the same time, she's really good at holding on to items with her little arm... And her chin. The chin has become a really important holding point on her body -- it helps her turn things around or temporarily hold something on its way to her little arm. It's amazing to watch. I really need to capture a bit more video of her walking and holding skills!

At the same time, Jordan is gooky. Her nose is running, she's coughing a lot. No fever and I still am pretty sure it's because she's making the many teeth she still needs to grow. Either way, all that mucus is causing a lot of really icky diaper problems. I've got her on the BRAT diet again, but I haven't seen much improvement. I might return to bland, but non-BRAT food. I can't quite decide.

5.08.2007

She has her own baseball

Here you go... My girl with her first baseball from Busch Stadium. It was hot, I got a sunburn. But she didn't seem to mind. The hardest part was keeping her hydrated even though she'd been on the BRAT diet. You know: Banana, Rice, Applesauce and Toast. I brought toast, applesauce and bananas along with Pedialyte. When the Pedialyte turned into a warm orange liquid, Jordan wasn't very interested. So we did our best with water. She seemed okay.

Today, her intestines went back to mush... So we're going to return to the BRAT at school tomorrow. Poor kid.

The good news is she's still bright and cheery unless I don't know what she wants. (It's usually something she's dropped on the floor, a piece of food on a family member's plate or a toy that is in Cam's hand.)

Jordan's physical therapist is going to meet her at school tomorrow... She ended up going out of town last week so she wasn't able to help encourage Miss Walking Jordan. Hopefully tomorrow will encourage the girl to pick up where she left off last week. That day that included a bunch of walking was an anomaly. Maybe our PT can help convince Jordan that she really does have a walking skill. Even Jordan's teachers are pretty certain she has "it" but it's going to take Jordan's wanting to use that walking knowledge.

We're so close!

In the meantime, I'm going to BRAT the girl up and hope she can get her tummy back to normal!!